Talk:Chronic fatigue syndrome

Source

Re: "these syndromes finally go is when the word gets out that they are really 'all in the mind' and not to be taken seriously"

I've seen that quote and ones like it repeated a fair bit in CFS/ME forums, and attributed to Simon Wessley by folks who'd like to see him burn, but I've never seen an original source citation for it. (Most of his traceable published foot-in-mouth insensitive remarks seem to relate specifically to Gulf War Syndrome). Helen 22:56, 21 February 2014 (UTC)

Wow

Wow. This seems, on the surface, to be a more gentler topic for the lunatic fringe to discuss. Their website reads crazier than most of the other ones I've seen, even some of the ones on cancer cures. WOW.^{— Unsigned, by: 173.230.98.68 / talk / contribs 09:57, 14 September 2014‎.}

New citations

Hi, I saw this article referenced somewhere and I'd like to provide some new citations. As I'm new here, I'll start with just showing some data. I think you'll be able to use it. :)

Pretty new government report: http://iom.nationalacademies.org/Reports/2015/ME-CFS.aspx

I guess you would be familiar with Dr. James Coyne. Here is what he has to say about the quackish evidence for some proposed treatments: http://blogs.plos.org/mindthebrain/2015/10/29/uninterpretable-fatal-flaws-in-pace-chronic-fatigue-syndrome-follow-up-study/ Note the links to a the blog of a virology professor, where a public health and journalism professor also has remarks about this study, and there is a back-and-forth between him and the study authors.

Griffith University website: https://www.griffith.edu.au/health/national-centre-neuroimmunology-emerging-diseases

Stanford University site: http://med.stanford.edu/chronicfatiguesyndrome.html

Recent NIH announcement: http://nih.gov/news/health/oct2015/od-29.htm

Columbia University site: https://www.mailman.columbia.edu/research/center-infection-and-immunity/chronic-diseases-microbiome#cfs (Note like many press releases, someone decided to describe the research as "the first" robust evidence of ME/CFS being a biological illness, but Dr. Komaroff of Harvard has been declaring this "debate over" since 2006, and others have said similar things: http://voicesfromtheshadowsfilm.co.uk/me-cfs-and-research/ )

MEA statement on the P2P report: http://www.meassociation.org.uk/2015/01/me-association-gives-a-guarded-welcome-to-the-us-pathways-to-prevention-p2p-report-5-january-2014/

NOVA University website: http://www.nova.edu/research/areas.html

Snowborne (talk) 04:52, 9 November 2015 (UTC)

Mentioned

On pheonixrising.me's "ME/Chronic Fatigue Syndrome Forums" section. The debate over whether RationalWiki is far left or far right is lovely. Mʀ. Wʜɪsᴋᴇʀs, Esϙᴜɪʀᴇ (talk/stalk) 21:18, 17 May 2017 (UTC)

Accuracy update 2020

While I'm no expert, I did notice that newer research has proven that ME/CFS is physical, not psychological. I overhauled the article based on what scientific organizations have to say about the condition. I'm glad that its nature is better understood and I hope a cure is found soon; it sounds like a truly awful thing to experience. Luna Rose ^{I'm shy; say hi} 20:34, 24 May 2020 (UTC)

Death threats and crazed patients

Not a few news outlets bought into that. I find it amazing that this sort of thing was trotted out to deflect from criticism of shoddy research looking to cast CFS as something that can be cured with the right type of "positive thinking". Chillpilled (talk) 23:29, 18 March 2023 (UTC)